Monday, March 26, 2007

Tatters is 6 months!




Hey Everyone~

I just wanted to send a picture update on our growing sweet girl. She thinks she is quite bigger then only 6 months and loves to go in her walker and explore where ever she can go. She has also enjoyed exploring new things to eat besides formula and boy does she love it, especially when Mimi gives her some of her pop cycle (as you can see in the picture). She is sweeter then sweet and glad we can at least share her through pictures to all of you since we are not able to see you all. We love you all and hope to hear from you soon!

Love~ Emily

Saturday, March 10, 2007

The end of a long week.......

Hey Everyone~

Sorry I haven't sent an e-mail out since our evaluation ended on Thursday but we have been a little occupied with being in the hospital again with pneumonia. I started having fever on Wednesday and it got worse Thursday night so we went to the ER and have been in the hospital since then. Putting that aside, the evaluation was a long tiring and sometimes frustrating week but we are thankful to have it done and are hopefully for the future. We so much appreciate your prayers though!! I hope to go home from the hospital in a day or two and pray the antibiotics work. It was been a very long week and I feel pretty drained in everyway but with the help of family and friends they have tried to keep me encouraged. God has blessed us and continues as always to hold us in the hard times.

Jason is hanging in there and continues to be the wonderful encouraging and loving husband. He is trying to teach Faith to say......Chevy, Chevy, Chevy! He wants to make sure she grows up right. =)

Faith is growing and "talking" all the time! She loves to suck on her toes, go on walks and eat pickles, oranges and apples ( or at least suck them dry!). Mama bought her, her first pair of flip flops (you can never have enough flip flops) along with her first two piece swim suite. She is one cute, hot little babe!

Thank you again for your prayers and support. It really means so much to have so many people support us. We love ya!

Love~ Em

Sunday, March 4, 2007

Evaluation Week

We could use your prayers this week as I go in for the evaluation for the transplant. I will be doing a series of tests Monday through Thursday and will go back on April 4th to find out if I will be able to be on the list. We are praying for wisdom as we make some medical decisions and one of those possibly involves stem cells. There is a doctor in California who is very interested in CF and stem cell research and through a family member heard about me and is interested in my case. It's still new stuff for us and we should be talking to the doctor on Monday to get more information. The procedure sounds amazing and has potential for some very positive results for CF patients as well as many other diseases. To make a long story short we are just looking at every option and hopefully prolonging the transplant as long as we can. I am ready to get this week over but I do appreciate your prayers and support!

Love~ Emily

P.S~ If you are interested in learning more about the stem cell research and CF you can go to www.pnas.org/cgi/content/full/102/1/186.