Update on Shaun

Thank you for your prayers for Shaun and his family. I'm getting my updates through another transplant friend, Katey, and today she talked to Shaun's mom on the phone. This is part of the update she wrote on her blog about Shaun-


Many of you have been praying for my friend Shaun, who is critically ill right now. He's a CF/transplant patient, who has, for reasons unknown to us, taken a turn for the worse this last month. He's had setback after setback after setback, but each time stabilizing somewhat. As of Sunday, he had stabilized from his most recent set-back, and started to improve a little. Today is a different story.

I called his Mom earlier to find out that he was not doing well. His prognosis was not good, and there was nothing else the doctors could do for him. His left lung has now collapsed, and consequently, has 4 chest tubes. His O2 sats are 73/74. He is on full pressure vent settings, as much as possible. His poor little body is as swollen as can be! It's now basically a waiting game, to see if God's ready to take him home or perform a miracle and let him continue his life here on Earth.

As you can tell things have continued to look worse and they continue to need your prayers. Although he is not conscious I am believing God is right there with him, giving him peace and strength. It's difficult to think how full of life he was and now he is barely holding on. The Lord has been quietly reminding me to NEVER take life for granted. To LIVE each day to the fullest, to enjoy what the Lord has given, to cherish each moment and the relationships I have. Shaun always has a positive attitude about life and it shines where ever he goes. So as you pray for him, remember to~

• Kiss your children and tell them you love them
• Call that person that has been on your heart recently
• Do something special for your spouse
• Tell your friends how much their friendship means to you
• Give someone that compliment you have been thinking but haven't said
• Write someone a note of encouragement
• And share the Good News of the Gospel to someone you have thought about witnessing too, because there may not be another opportunity.

So then, as we have opportunity let us do good to everyone, and especially to those who are of the household of faith. Galatians 6:10

Please pray with me......

It's hard for me to even write this but my friend, Shaun, is in desperate need of your prayers. The first time I met Shaun we were both waiting in a room together for the same thing.....new lungs. We both had got the call on December 15, 2007 to come in for a possible match. We sat in the waiting room for at least 6 or 7 hours so we got to know each other pretty well. When they came in to tell us that Shaun would be receiving the new lungs I was very excited for him. He is so full of life and so animated in all he does that I just knew he would do well.

He did do very well up until this past month and for unknown reasons he took a huge turn for the worse. Now the doctors don't know if he will make it through the night or the week. Medically there is nothing more they can do for him, but I know the Lord is not limited by our boundaries and that He can still do a miracle if it is His will. It's so hard not to be able to be there to see him and his family. So please intercede for him and his family. Thank you......

This was taken last summer of me, Katey (also a transplant friend) and Shaun

"I look up to the hills, but where does my help come from? My help comes from the Lord, who made Heaven and earth". Psalm 121:1-2

"Let us, then, feel very sure that we can come before God's throne where there is grace. There we can receive mercy and grace to help us when we need it". Hebrews 4:16

GREAT STRIDES

Hopes or dreams were not much of a reality for people with Cystic Fibrosis when I was born, yet today not only are hopes and dreams coming true there are miracles! When I was diagnosed with Cystic Fibrosis at the age of 3 months old, the hope that I would ever live very long or have a normal life were small. Cystic fibrosis (CF) is a devastating genetic disease that affects tens of thousands of children and young adults in the United States.

Though my journey with CF has been quite a battle to fight, I am thankful for the life I have and the many blessings I have been given. I have had the wonderful blessing of being a wife to an amazing man and in 2006 we found out we would be expecting our miracle baby. Faith, who is now 2 1/2 yrs. old is healthy, beautiful, fun and a joy to our family!

In 2007 I was put on the transplant list due to my failing lungs. My lung function at the time was 16 to 18%. It was a difficult year as I waited for some healthy lungs, but on June 8, 2008 I was given that miracle. A family that didn't even know me gave me a second chance at life. THANK YOU!!! I no longer have CF in my lungs yet I will always deal with the other issues that go along with CF (pancreas, sinus...etc). My journey with CF, and now as a transplant patient has been a rough road and I could not have done it without the amazing support of my family and friends. Over the years you all have given so much to us and we could never say thank you enough.
There has been great steps in furthering the quality of life for those with CF, yet there is STILL so much to be done. Until we hear the words "Cure Found" our mission is not done! Please consider making a gift that will be used efficiently and effectively, as nearly 90 cents of every dollar of revenue raised is available for investment in vital CF programs to support research, care and education.

Making a donation is easy and secure! Just click the "Click to Donate" button on this page to go to make a donation that will be credited to my team. Any amount you can donate is greatly appreciated!

If you would also like to come out and be apart of the GREAT STRIDES walk with us, the walk will take place on Saturday, May 16th at LCU starting at 8:30 AM.

Thank you for supporting the mission of the CF Foundation and GREAT STRIDES!

Many Blessings,

Emily Mulkey

Who Loves Chick-fil-A?!

My friend, Cynthia (who loves CFA), posted this on her facebook and I just thought it was GREAT!!! It always makes you feel good to hear people say they "Love Chick-fil-A!" It is an awesome company and we feel very blessed to be apart of it.
Chicken, waffle fries, sweet tea and a cow what more could you want?! =)


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P.S- Check out Tim Hawkins website. I have never heard him in person but I would love to attend one of his shows. His videos will keep you laughing!

Crazy Lady on the Loose!

I'm thankful the Lord has much grace for this crazy lady. I'm very excited to report the bronchoscopy went well and that there is NO signs of rejection or infection!!! This is a huge answer to prayer! I know so many of you were praying for me and I can't thank you enough for your support. I have done good after the bronch......well at least other then being a little on the crazy side! I am so thankful I did well after this one however I am starting to believe I am becoming more delirious and irritable the more bronchs I do.

For example my rump (or bottom) is sore due to getting a shot of Benadryl in the recovering room. My husband says I WAS persistent in them giving me some even though my IV was not working anymore and they would have to either start a new one or give me a shot in my rear end! OK, let me pause here to say I would NEVER have them start a new IV just for that nor would I want another shot, that is if I was sane!

I also called my sister later that afternoon (don't remember that either) and gave her a recipe that she was wanting (popcorn cake). I called her on Wednesday asking her what exactly I said to her because I had no idea and she said, "Well, the cake turned out great!" So, I guess I can give out recipe instructions by memory (which is a miracle) but can't remember the phone conversations. =)

Jason also said on the way home he needed to get some gas and I insisted that he not stop at this one exit and go down to the next one in which Jason knew it would be a ways till the next exit. So, I guess we were very much on the E when we pulled up to the gas station. I'm very thankful I married a VERY patient man.

Over all though we are rejoicing at the good report! It's been wonderful to catch up with friends here and get some things fixed on our house. We will head home on Saturday. Hope you and your families are doing well.

Tuesday update

Well, it has been a long day but praise God the bronchoscopy went well so far. We'll see how I do tonight, I'm just mainly tired. We go to clinic tomorrow to see the doctors but I'm not sure when we will get the results back from the bronch. Thank you for your prayers.

I did have a wonderful time being with Emily T. and her new sweet daughter, Savannah! I also was able to go visit my sister which was very awesome! So I got to drive all over the east and then I picked Jason and Faith up in Birmingham last night.

I'll try to give updates through out the week. Hope you all are doing well!