Well, this is my first attempt to start a blog for our family. Many of my friends have started one and I love checking their blogs and keeping up with their lives. I hope to use this to keep family & friends updated with pictures/videos of the Mulkey clan, and what better way to start a blog then with kisses from our sweet baby girl! Faith likes to give kisses...........but you have to be pretty special for her to give them away.
We had our 3rd dry run today for transplant. We got the call at 2:30 am and by 9:00 am they decided the lungs were a little too big for me. Sitting next to me waiting for the same lungs was a guy who had CF as well and he was the one that ended up getting the lungs. We were happy for him! It was interesting, and nice talking to someone who was in the same boat as you. He is 25 and he has a younger brother who also has CF. (So thankful there is just one in my family) Anyway, he wants to stay in contact and let us know how he does and give me a heads up on what to expect. We are not sure why God continues to have us wait but we are hopeful it will be soon. Thanks for your continual prayers!
~Emily
Praise God we are home! We got home yesterday but I've been really tired and weak so I haven't got on the computer till tonight. I will continue on I.V's for at least another 10 days but at least we are home. Thank you again for all your e-mails and encouraging words.
~Emily
Thank you all for your continual prayers. It's been a long week and my spirits are better but I'm still ready to go home. We are still waiting for the test cultures to come back and show what infection I have and what meds should work. I think I have been labeled one of the difficult patients on the floor but like Jason says I just have some spark. (More like loose wires going crazy!) I am so thankful to have my sister here though, she has been taking care of Faith and bringing in down here so I can spend time with my sweetie. I'm also thankful for God's mercy towards me and giving me grace when I don't deserve it. He has given me some good verses of hope. Thanks again for everything you all do! We are hopeful to be going on by this weekend.
~Emily
"We have troubles all around us, but we are not defeated. We do not know what to do, but we do not give up the hope of living. We are persecuted, but God does not leave us. We are hurt sometimes, but we are not destroyed." 2 Cor. 4:8-9
"So do not lose the courage you had in the past, which has a great reward. You must hold on, so you can do what God wants and receive what he has promised." Heb. 10:35-36
We continue to need your prayers. I am in the hospital again but in Birmingham this time. My doctor in Cullman was out for a missions trip so my only other option was to call our doctor in Birmingham (CF clinic). And of course they require their patients to be in the hospital for several days while on I.V's. I have been very blessed or spoiled in doing my I.V's at home so I hate having to be in the hospital. (It seems so pointless to me) I think infection has set in again and so it's good that I'm getting on meds again but it's just been a very discouraging day and I feel very weary in every aspect. Please pray for me as I always have such a hard time being away from Faith, pray the meds help and that I can go home soon on home I.V's, and pray for Jason and Callie as they go through all of this too. Despite the hard day we still have lots to be thankful for, we have been blessed.
Thank you for your support and prayers.....Hope you and your families are doing well and had a good Thanksgiving!
~Emily
Hey everyone~
Just wanted to share a praise with you all. I went to the doctor on Wednesday and my left lung has re-expanded, praise the Lord. We just pray it will continue to stay up. I am now at the top of the list for my blood type so they are hopeful it will be soon. Thanks again for your prayers.......
Here are some pictures of our little ballerina and riding in the car.
Love~ Emily
Hello Everyone~
Well, we had a very cute ladybug this year for Halloween. We went to the fall festival at our church and she was pretty overwhelmed by all the people, lights, and noises. She just sat frozen in her stroller for a while but then she loosened up when she found candy in her little bag and decided to eat through the paper to get to the candy. And as you can tell in the last picture she was pooped at the end of the night. It's hard being a cute ladybug.........
I went to the doctor yesterday and took another x-ray and found my left lung has collapsed again about 20%. The doctor didn't want to put another chest tube in if at all possible so she said if my pain continues to get worse then go in to the ER but hopefully it might heal by its self. Please pray God will heal the hole and my lung can re-expand by its self without the help of a chest tube again. Thanks for your prayers!
Love~ Emily
Hey~
The doctor clamped the tube yesterday and was hopeful my lung would stay up so she could pull the tube today and I could go home but there was a little bit of a pnuemothroax (collapse) still in the top part of my lung so she wants to go another day to see how it does. As much as I want the tube out I like the doctor want to make sure it's the right time to take it out. So, maybe tomorrow we will get to go home...........
I told Jason I hope the next time I have a chest tube is when I have my transplant. (Which they tell me I will have 6!) All I have to say is they better have some REALLY good pain medicine! Well, we will keep you updated........
~Emily
We have been in the hospital a week today but I think I'm slowly making progress. The doctor took off the suction on my chest tube tonight so we will see if my lung can stay up without it, if it can they will then clamp the tube for 24 hrs and see how the lung does and then maybe pull it out. The doctor wants to make sure it is totally closed up before she pulls the tube! Which I fully agree, don't want to have to re-insert the tube if at all possible! Thankfully Jason is still here and I think he will head back to TX on Saturday because my mom is coming in for a couple of days. Thank you all for your encouraging e-mails, phone calls and prayers! Love ya......
Love~Em
