Friday, September 11, 2009

This Past Week

Hello everyone...it's Emily T. Just thought some of you might want a specific update on Emily's progress this week. If you missed the previous post, be sure to read Emily's very own words below. When you move inches but still have miles left, it feels like a very long road but moving forward IS progress and brings Emily that much closer to her goal. Em, don't forget The Tortoise and the Hare. The tortoise wins every time. :-)

Here's the rundown of what I know to share:
* Dialysis is now every other day rather than 24/7...her kidneys are improving
* Her oxygen is down to 40% and her vent setting at 8 I believe. Her saturations are staying in the low 90s which is ok but pray they can be in the upper 90s and stay there.
* She was able to sit in the chair for a few hours earlier in the week...first time out of bed in a long time
* She has been able to skype with Faith almost every day...very good and very hard all at the same time
* She got a new central line (painful) which basically affected the entire day
* She had a bronchoscopy yesterday just to make sure there was nothing there and take a sample culture to test for any growth. Everything looked good and the results will be back in a few days.
* Emily had a fever last night (side affect of the bronch) but it broke this morning...yay!
* Physical Therapy was supposed to come and Jason said the plan was to "get after it"...be praying for physical, mental and emotional strength to push through any pain, discouragement and frustration
* She is antsy to get out of bed and get much further down this road...hopefully a good motivator that the Lord will use. :-)

Thank you Lord for all the big and small ways that you love us, care for us, and provide for us. Thank you for what you have done in Emily and what you will do.

7 comments:

Katey said...

Yes, Thank you Lord!~!!! Praying for physical, mental, and emotional strength!

Unknown said...

That is such GREAT news! I've been praying for you and will continue to do so...

Ronnie

susan said...

thanks so much for the update. I know the road is slow but we are so thankful for a road at all!
We will continue to pray especially for her emotional strength and determination, that controls so much. We love you Em, Jason and Faith. Emily T., you are the best friend ever. In Him, susan and wes

Anonymous said...

Em, You are constantly in my thoughts. My heart broke when I read the first post about having to be back in the hospital for such a long time. Faith is in good hands, and so are you. We have been going through The Psalms of Ascents right now and I can so see you in this journey of the travelers on their way to the Holy City. You have so much to sing about. I am anxious to see what you will sing when the time comes again. I love you girl, Tanna

Anonymous said...

Praying for you, Emily and Jason and Faith and family! Be strong! Focus on the baby steps! Tres and I can't even begin to imagine your lives right now. We try to put ourselves in your shoes, but we just have no idea! Our hearts can't comprehend it...we pray, though for you, sometimes through tears. May God give you all the strength you need for each baby step.
Love,
Tres and Carrie

Anonymous said...

Thanks for the updates, it was wonderful to "hear" Emily's voice this weekend! Still praying for you Emily, and your whole family.

Renee said...

Hi Emily,

I've been reading The Mulkeys and have enjoyed it despite the difficult medical experiences you and your family unfortunately have had to post about recently; I appreciate your honest depiction of life with cystic fibrosis, and I want to wish you a speedy recovery. I thought that you and your readers would find this creatively focused scholarship contest for students with cystic fibrosis (CF) interesting:

www.SolvayCARESScholarship.com

40 SolvayCARES Scholarship recipients, one of whom will be named the 2009 Thriving Student Achiever, were selected to receive $2,500 for use during the academic year. As a special recognition for the amazing achievements of this year’s scholarship applicants, every eligible 2009 applicant was honored with a $500 scholarship. As a result, nearly 250 students are receiving educational funding this academic year through the SolvayCARES Scholarship program!

Furthermore, to celebrate the 17th year of the scholarship, this year's Thriving Student Achiever will be awarded $17,000! Voting for the Thriving Student Achiever starts today and ends October 15th. You can vote online, call toll free or text so be sure to check out the site to learn more.

Also if you would like to check out the video montage of all the students’ art, visit this URL: http://www.solvaycaresscholarship.com/video-2009.php Email me if you’d like the code to embed the video on your site.

Any way you could help spread the word about this program and encourage voting is most appreciated!
If you have any questions or would like further information, please don't hesitate to get in touch with me.

Kind regards,
Renee Barone
baroner@ruderfinn.com